The PRecIsion Medicine for CardiomyopathY (PRIMaCY©) study is an international multicenter observational cohort study. This study has developed a tool that uses patient variables to predict the sudden cardiac death (SCD) risk in pediatric patients with hypertrophic cardiomyopathy (HCM).
The Precision Medicine for Cardiomyopathy (PRIMaCY) Score calculator along with eligibility and instructions can be found on MDCalc and by clicking the link above.
Additional ways to access PRIMaCY SCD Risk Calculator:
Free MDCalc mobile app available through Apple App Store and Google Play
MDCalc for EHR available through EPIC Show Room
License PRIMaCY: Contact heartcentrebiobank@sickkids.ca to request a non-exclusive license to use the PRIMaCY risk code for clinical use.
Dr. Seema Mital (PI)
Dr. Seema Mital, MD, is a Staff Cardiologist and Senior scientist and Professor of Pediatrics at the Hospital for Sick Children, University of Toronto in Ontario, Canada. Dr. Mital’s research focuses on cardiac precision medicine for childhood onset heart disease. The full list of publications and her contact information is available here: https://lab.research.sickkids.ca/mital/
Acknowledgement
We thank Chun-Po Steve Fan, Emily Somerset and Myriam Lafreniere-Roula (Ted Rogers Computational Program, Ted Rogers Centre for Heart Research, The Hospital for Sick Children, University Health Network) for their collaboration in the analysis, development and implementation of the risk calculator.
Relevant publication
Miron A et al. A validated model for sudden cardiac death risk prediction in pediatric hypertrophic cardiomyopathy. Circulation 2020; 142(3): 217-229.