The PRecIsion Medicine for CardiomyopathY (PRIMaCY©) study is an international multicenter observational cohort study. This study has developed a tool that uses patient variables to predict the sudden cardiac death (SCD) risk in pediatric patients with hypertrophic cardiomyopathy (HCM).

Open the PRIMaCY© SCD Risk Prediction Tool

The Precision Medicine for Cardiomyopathy (PRIMaCY) Score calculator along with eligibility and instructions can be found on MDCalc and by clicking the link above.

Disclaimer: The PRIMaCY© App (“the App”) is provided for use by healthcare professionals. Use of this App and the information/data derived from it should never be a substitute for the skill, knowledge and experience of a qualified healthcare professional dealing with the facts, circumstances and symptoms of a particular case. The App is owned by the Hospital for Sick Children and is intended for personal non-commercial purposes. For other uses or license inquiries, please contact The Hospital for Sick Children’s Industry Partnerships and Commercialization Office. The App is provided “AS IS” and The Hospital for Sick Children makes no other warranties with respect to the App, including but not limited to those of merchantability and fitness for a particular purpose.

By using the App, you hereby waive any claims, causes of action and demands whether in tort or contract against The Hospital for Sick Children (including its employees, physicians, directors and agents) in any way related to use of the App and the information/data derived from it.

Additional ways to access PRIMaCY SCD Risk Calculator:

Free MDCalc mobile app available through Apple App Store and Google Play

MDCalc for EHR available through EPIC Show Room

License PRIMaCY: Contact heartcentrebiobank@sickkids.ca to request a non-exclusive license to use the PRIMaCY risk code for clinical use.

Dr. Seema Mital (PI)

Dr. Seema Mital, MD, is a Staff Cardiologist and Senior scientist and Professor of Pediatrics at the Hospital for Sick Children, University of Toronto in Ontario, Canada. Dr. Mital’s research focuses on cardiac precision medicine for childhood onset heart disease. The full list of publications and her contact information is available here: https://lab.research.sickkids.ca/mital/

Acknowledgement

We thank Chun-Po Steve Fan, Emily Somerset and Myriam Lafreniere-Roula (Ted Rogers Computational Program, Ted Rogers Centre for Heart Research, The Hospital for Sick Children, University Health Network) for their collaboration in the analysis, development and implementation of the risk calculator.

Relevant publication

Miron A et al. A validated model for sudden cardiac death risk prediction in pediatric hypertrophic cardiomyopathy. Circulation 2020; 142(3): 217-229.

Read the full publication